The Periodic Paralysis Association (PPA) today announced the 2nd annual World Periodic Paralysis Day (WPPD), to be observed March 23, 2026. The global initiative brings together nonprofit ...
More than 15 years of research led by neurologists at the University of Rochester Medical Center (URMC) has culminated in the first approved treatment for individuals with a rare neuromuscular ...
In the past 15 years, Ryan Csupak has been in an emergency room 30 to 40 times, unable to move his legs and arms. He’s experienced shortness of breath, extreme fatigue and weakness. This is the ...
Scientists have identified a gene underlying a disease that causes temporary paralysis of skeletal muscle. The finding, they say, illustrates how investigations of rare genetic diseases can drive ...
The Company is offering a dedicated support platform called Cycle Vita to provide individualized product support to patients. Ormalvi ™ (dichlorphenamide) has been made available by Cycle ...
Like many rare disorders, periodic paralysis can go undiagnosed and be easily misinterpreted as a wide variety of neurologic or other disorders. But with increased awareness of the unique symptoms of ...
VANCOUVER — For patients with hypokalemic periodic paralysis (PP), dichlorphenamide (Keveyis, Taro Pharmaceutical Industries Ltd) significantly reduces the rate and severity of muscle weakness attacks ...
A rare genetic disorder in which people are suddenly overcome with profound weakness or temporary paralysis is caused by a hole in a membrane protein that allows sodium ions to leak across cell ...
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