Meet my 4th baby: Fragile Wings, Fierce Hearts 🦋 When Mackenzie was born, we were told she had a horrific disorder (Recessive Dystrophic Epidermolysis Bullosa), with a life full of pain ahead of her. But we were also told there was hope. That research had recently facilitated 2 new FDA approved treatments for EB (and 2 soon became 3 within a few months of Kenzie’s life!). That research was nearing the science behind what will likely become a cure. I understand that we are years away from a legi
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Meet my 4th baby: Fragile Wings, Fierce Hearts 🦋 When Mackenzie w…
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Seventeen-year-old Mackenzie Cowell was the kind of girl everyone liked — cheerful, confident, and full of dreams. On February 9, 2010, after a short break from beauty school in Wenatchee, Washington, she texted a friend that she’d be “right back.” But Mackenzie never returned. Her car was later found abandoned near the Columbia River. Inside — her purse and cell phone, but no sign of a struggle. The next day, search teams discovered a horrifying scene along the riverbank: her body, partially wr
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