Over the last couple of weeks, I have been trying to capture a little video every day as a remembrance of this unique time in our lives. I’ve been compiling it into weekly updates on YouTube. Here’s a little snippet from last week when we learned about money and found an app that helps blind people identify bills by scanning them and reading their value out loud. It’s called EyeNote and it’s really cool! You can watch the whole video at the link in first comment! Do you guys have any app suggest
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Over the last couple of weeks, I have been trying to capture a little vide…
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FacebookAngie and Ruby
What is Stromme Syndrome (Ruby’s genetic condition)? #rare #disability #disabilityawareness #learnontiktok #tiktokpartner
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When Ruby was born, she spent 56 days in the NICU. Too fragile for daycare, I couldn’t work. Social Security helped us survive. Medicaid kept us from going bankrupt. Special Education gave her communication, braille, and mobility skills. Inclusion gave her friendships that lasted beyond school. Accessibility lets her open doors, use a cane, and have a service dog for independence. Now at 20, Medicare ensures she gets the healthcare she needs for life. These programs aren’t just policies. They ar
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When Ruby was born, she spent 56 days in the NICU. Too fragile for d…
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FacebookAngie and Ruby
Ruby and I have been spending more time together than ever before, which is helping me to become more aware of new opportunities for her to gain independence around the house. In the past, she would ask for a snack and I would get it for her, but I decided it was time to clear out a drawer in the cupboard and fridge just for her snacks so she can grab one whenever she wants. As you can see from this video, she has enjoyed sampling all of the goodies in her drawer throughout the day and was excit
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Ruby and I have been spending more time together than ever befo…
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This girl. She astounds me every single day. I knew from the moment she was born that she was strong, fierce and was going to break through all perceptions that were placed upon her. But I didn’t know what that was going to look like. I learned from the very beginning that I needed to let her lead the way. Because while I thought I knew what was best for her, I also knew that forcing her to do things would never lead to true independence. She had to be excited and onboard in order for things to
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This girl. She astounds me every single day. I knew from the mome…
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In case you needed a video teaser to encourage you to watch the whol…
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I shared this video last year, but I’m sharing it again because I can’t ge…
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Yesterday we were driving when this song came on. Ruby started singi…
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You guys had questions -- and we have answers! Learn all about Ru…
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