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Spotlight on Leber congenital amaurosis (LCA) 👁️🗨️ “For so long, I believed research would help someone else, but not me. Now I’m living it.” Meet Lindsey Rambo: mom, runner, educator, and the first participant in the groundbreaking Opus Genetics gene therapy trial for LCA5. After decades of uncertainty and vision loss, Lindsey’s story is one of real hope and real progress. From spotting her kids playing in the yard for the first time to inspiring others through advocacy—Lindsey is lighting t
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I’ve always known that this could happen, I just never thought it could happen to us & that in the blink of eye your whole life could change… we are praying for Neo and for answers on how this happened🙏🏻❤️ Thankfully right now he is ok and we have follow up appointments to get more answers
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It's called nystagmus, and it is the involuntary movement of the eyes that can sometimes be seen in blind people, depending on the cause of blindness. Brennan and Mina both have Leber's Congenital Amaurosis (LCA), which is a rare genetic mutation that causes blindness from birth. Their particular mutation prohibits the cells in the body from creating an enzyme that is necessary for a healthy retina. As a result, they have severe vision loss and nystagmus from birth. What they have is also progre
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