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Robert F. Kennedy Jr. announces the launch of an autism registry

Robert F. Kennedy Jr. announces the launch of an autism registry

MSNKREM-TV Spokane

The NIH says it won't be creating an 'autism registry,' defying what the Department of Health and Human Services Secretary, RFK Jr. has ordered. Instead, it will be using existing data to create a database to research the condition. 'We are not creating an autism registry. The real-world data platform will link existing datasets to support research into causes of autism and insights into improved treatment strategies,' an official for the Nation Institutes of Health emailed CBS News. The directo

The NIH says it won't be creating an 'autism registry,' defying what the Department of Health and Human Services Secretary, RFK Jr. has ordered. Instead, it will be using existing data to create a database to research the condition. 'We are not creating an autism registry. The real-world data platform will link existing datasets to support research into causes of autism and insights into improved treatment strategies,' an official for the Nation Institutes of Health emailed CBS News. The directo

67.1K viewsApr 30, 2025

FacebookNowThis Impact

Maine advocates push back against federal plan for autism registry

Maine advocates push back against federal plan for autism registry

RFK Jr. says autism database will use Medicare and Medicaid info

RFK Jr. says autism database will use Medicare and Medicaid info

NIMH History

NIMH History

NIH autism study will pull from private medical records

NIH autism study will pull from private medical records

What you need to know about the national 'Autism Registry'

What you need to know about the national 'Autism Registry'

MSNWPTV NewsChannel 5 West Palm Beach,FL

Robert F. Kennedy Jr. says he plans to launch 'autism registry

MSNFOX 26 Houston

Anxiety Disorders

2K viewsOct 10, 2010

NIH Director talks autism research

spectrumnews1.com

Timing of the Diagnosis of Autism in African American Children

HHS pushes back on registry for autism

MSNFOX 32 Chicago

What we know about RFK Jr.'s 'autism registry' plan

MSNWCNC-TV Charlotte

Talk of a national autism registry lit up the disability rights community. Now, the Dept. of Human and Health Services is backtracking — but concerns over ethical data collection remain. Here's what advocates like "Love on the Spectrum" star Dani Bowman and countless parents are saying about the role of public health in supporting the autistic community ... Ryan Smith, a parent to two neurodivergent children, started a petition against the registry that gathered nearly 50,000 signatures. You can

3.9K viewsApr 29, 2025

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Utah advocates share worries over privacy connected to autism registry

MSNFOX 13 KSTU Salt Lake City,UT

Robert F. Kennedy Jr.’s proposed national autism registry is a dangerous overreach, weaponizing medical data under the guise of research. Compiling sensitive health records — from pharmacies, labs, fitness trackers, and even veterans — into a centralized database risks unprecedented privacy violations. Plus, outsourcing this data to third-party researchers could invite exploitation. Kennedy’s labeling of autism as a ‘preventable disease’ and ‘tragedy’ promotes harmful, debunked narratives that d

508.4K viewsApr 23, 2025

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NYS Assemblyman speaks out following potential National Autism Registry

Legal Questions Raised Over Reported Plan for National Autism Registry

NIH to spend $50M on autism cause studies, experts say US should focus on treatments

goodmorningamerica.com

Parents, professionals express concerns about proposed national 'Autism Registry'

'Cause of the rise in autism, a question scientists scared to ask': Jay Bhattacharya, NIH Director Nominee

MSNThe Economic Times

NIH launches autism study using Medicare, Medicaid data, local experts react

Bay Area couple's nonprofit forms first-of-its-kind autism emergency alert registry

MSNCBS SF Bay Area

Sutter to launch trial treatment of autism

CDC reports increase in Autism rates

The IndependentJulia Musto

Utah advocates concerned over privacy invasion connected to proposed autism registry

US autism rate continues to rise, CDC says, pointing to greater awareness and better screening

WCVBDeidre McPhillips,CNN

Amid alarm over a US ‘autism registry’, people are using these tactics to avoid disability surveillance – podcast

theconversation.com

Canceled appointments, pleas to shred records: Talks of autism registry put families on edge

Experts denounce RFK Jr.'s autism claims

CBS NewsAlexander Tin

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